F. SIGNATORIES
Michael M. Kaback, MD, Principal Investigator
Karen Greendale, MA, CGC, Co-Principal Investigator
Lizbeth M. Fonseca, MS, Project Coordinator
Guidelines Development Team:
Peter T. Rowley, MD* Co-Chair - University of Rochester Medical Center
Gladys Rosenthal, MS, CGC, Co-Chair - National Society of Genetic Counselors
Avi Barbasch, MD - American Cancer Society
Stephen B. Edge, MD - American College of Surgeons
Carolyn D. Farrell, CNP, MS, CGC - International Society of Nurses in Genetics
Beth A. Fine, MS, CGC - American College of Medical Genetics
Thomas L. Goodman, MD - Upstate NY Society of Medical Oncology/Hematology
Ken Offit, MD, MPH* - Memorial Sloan-Kettering Cancer Center
Ruth Rosenblatt, MD - American College of Radiology
Carolyn D. Runowicz, MD* - Albert Einstein College of Medicine and Montefiore
Medical Center.
Guidelines Dissemination Team:
Stirling M. Puck, MD, Co-chair - Biotechnology Industry Organization
Thomas C. Rosenthal, MD, Co-Chair - American Academy of Family Physicians
Kathy Ciccone, MBA, RN - Healthcare Association of NYS
David Mastrianni, MD - Upstate NY Society of Medical Oncology/Hematology
Noma Roberson, PhD*- Roswell Park Cancer Institute
Lois Waldman, JD - American Jewish Congress
Guidelines Evaluation Team:
Dale Lea, RN, Co-Chair - International Society of Nurses in Genetics
Paul A. Gitman, MD, Co-Chair - American Society of Internal Medicine
Jeffery P. Struewing, MD, MS*, Co-Chair - National Institutes of Health
Elly Kirschner, MA - National Alliance of Breast Cancer Organizations
John D'A. Reinhard, MD - The HMO Group
Project Steering Committee: The Steering Committee provided oversight on
development, dissemination and evaluation of two clinical guidelines; the second is on
"Evaluation of the Newborn with Single or Multiple Congenital Anomalies".
Avi Barbasch, MD - American Cancer Society
Hope Charkins, MSW - Alliance of Genetic Support Groups
Cynthia Jane R. Curry, MD - American College of Medical Genetics
Jessica G. Davis, MD - American College of Physicians (NYS Chapter) and American
Public Health Association (NYS Affiliate)
Franklin Desposito, MD - Council of Regional Networks for Genetic Services
Stephen B. Edge, MD - American College of Surgeons
Carolyn D. Farrell, CNP, MS, CGC - International Society of Nurses in Genetics
Beth A. Fine, MS, CGC - American College of Medical Genetics
Alan R. Fleischman, MD - NYS Task Force on Life and the Law
Paul A. Gitman, MD - American Society of Internal Medicine
Rosalie Goldberg, MS, CGC - National Society of Genetic Counselors
Kurt Hirschhorn, MD - American College of Medical Genetics Foundation
Elly Kirschner, MA - National Alliance of Breast Cancer Organizations
Lauren Lynch, MD - American College of Obstetricians and Gynecologists
Mary Louise F. Merola, MD - American Academy of Family Physicians
Kenneth Offit, MD, MPH* - Memorial Sloan-Kettering Cancer Center
Stirling M. Puck, MD - Biotechnology Industry Organization
John D'A. Reinhard, MD - The HMO Group
Luther Robinson, MD - Organization of Teratology Information Services
Ruth Rosenblatt, MD - American College of Radiology
Lawrence R. Shapiro, MD - American Academy of Pediatrics, March of Dimes Birth
Defects Foundation, and Medical Society of the State of New York
Jeffery P. Struewing, MD, MS* - National Institutes of Health
Cherie Trabert, RN, MS - American Public Health Association (NYS Affiliate)
Although only two project participants were specifically representing recognized
consumer advocacy groups, three other participants representing professional societies were
themselves breast cancer survivors and functioned in a dual role.
* Those individuals marked with an asterisk did not represent a professional society
or institution.
American College of Medical Genetics Professional Practice and Guidelines Committee:
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William J. Conte, MD
George C. Cunningham, MD
Cynthia Jane R. Curry, MD
Beth A. Fine, MS
Lynn D. Fleisher, PhD, JD
Karen Greendale, MA
James W. Hanson, MD
Susan J. Hayflick, MD
W. Alan Hogge, MD |
R. Rodney Howell, MD
Lewis B. Holmes, MD
Michael M. Kaback, MD (Chair)
Lawrence G. Leichtman, MD
Edward R.B. McCabe, MD
Reed E. Pyeritz, MD
Linda Randolph, MD
Michael S. Watson, MD
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Consultants:
George C. Cunningham, MD
Director, Genetic Disease Branch, California Department of Health Services
Jacob Reiss, MD
Chair, National Kaiser Permanente BRCA Project Team and Director of Genetic Services, Kaiser Permanente Northwest
Ann M. Willey, PhD
Laboratory Policy Development, Wadsworth Center, New York State Department of Health
The following clinicians and breast cancer advocates reviewed these guidelines and
made many useful suggestions. Their comments were invaluable.
Francis Collins, MD, PhD
Gayle Feldman
Judy Garber, MD, MPH
Carol Hochberg
Ira Kalfuss, MD
Beth Karlan, MD
Rosemary Locke |
Richard Morrow, MD
Agnes Masny, MD
Mary Rappazzo, MD
Michael Rice, PhD
Joshua Roth, MD
Jill Stopfer, MS, CGC
William C. Wood, MD |
We would like to acknowledge the numerous staff of the New York State Department
of Health, members of the New York State clinical genetics community and representatives
of professional societies who also reviewed the document's content.
Thanks to Keith Servis and Barbara O'Donnell for all their support and to Skye
Brown, Rima Rosenthal, Jan Galligan, and Kevin Naughton for able technical assistance.
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Send questions or comments to:
brcpg@health.state.ny.us