Ovarian Cancer Resource Materials - Organizations
American Cancer Society1599 Clifton Road NE
Atlanta, GA 30329-4251
Provides free literature and helps patients obtain financial and medical assistance; 24/7 information and resource telephone number (1-800-ACS-2345) available in English and Spanish. Patient and Family Services also available, including "Road to Recovery", "Look Good … Feel Better", etc. All services are free of charge.
American College of Medical Geneticswww.acmg.net
Their website includes "Genetic Susceptibility to Breast and Ovarian Cancer: Assessment, Counseling and Testing Guidelines" (produced in collaboration with the NYS Department of Health).
American College of Obstetricians and Gynecologists Resource Center409 12th Street SW
Washington, DC 20024-2188
A professional organization of physicians who specialize in women's health care.
American Society of Clinical Oncology225 Reinekers Lane, Suite 650
Alexandria, VA 22314
Referrals to gynecologic oncologists in your area.
Cancer Care275 Seventh Avenue
New York, NY 10001
Offers educational and support services at no charge to people living with cancer.
Cancer Information Service
National information and education network sponsored by the National Cancer Institute, 800-4-CANCER.
Corinne Feller Memorial Fund34 Daisey Lane
Montgomery, NY 12549
phone: (845) 778-6607
This organization, formed in memory of a young woman who died of ovarian cancer at age 18, focuses on fundraising, education and awareness.
Centers for Disease Control and Prevention, Division of Cancer Prevention & Control4770 Buford Highway NE, MS K64
Atlanta, GA 30341
Department of Defense Ovarian Cancer Research Program – Congressionally Directed Medical Research Programs
Further information available at http://cdmrp.army.mil/funding/04ocrp.htm or by calling (301) 619-7071.
FORCE – Facing Our Risk of Cancer Empowered, Inc.934 North University Drive, PMB#213
Coral Springs, FL 33071
For those at increased risk of breast/ovarian cancer due to positive family history and/or BRCA mutations. Gather information and support, communicate with others, learn through librarian-selected links, and locate specialists.
Gilda Radner Familial Ovarian Cancer RegistryRoswell Park Cancer Institute
Elm and Carlton Streets
Buffalo, NY 14263-0001
This line is answered by the Cancer Information Specialists of Roswell Park Cancer Institute who respond to questions regarding diagnosis, treatment and continued care for ovarian cancer patients, friends and families. In addition, the Registry has a HELP-LINE, a telephone support service for women at high risk of ovarian cancer. By calling 1-800-OVARIAN and asking for a HELP-LINE volunteer to make a return call, women will be in contact with concerned volunteers who have made the decisions they are now facing. This enables women to have a one-to-one telephone conversation with other high-risk women or ovarian cancer survivors.
Gilda's Club Worldwide322 Eighth Avenue, Suite 1402
New York, NY 10001
Provides a place where people living with cancer, their families and friends can join others to build social and emotional support as a supplement to medical care.
Gynecologic Cancer Foundation (GCF)401 N. Michigan Avenue, Suite 2200
Chicago, IL 60611
The mission of the Gynecologic Cancer Foundation is to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment. The Foundation supports research and training related to gynecologic cancers.
HospiceLinkHospice Educational Institute
3 Unity Square
Machiasport, ME 04655
Nonprofit service that provides information on hospice care and refers cancer patients and their families to local hospice programs and publications.
Kids KonnectedPO Box 603
Trabuco Canyon, CA 92678
Provides friendship, education, understanding and support to kids who have a parent with cancer.
Lance Armstrong FoundationPO Box 161150
Austin, TX 78716-1150
Focuses on cancer survivorship issues for people living with, through and beyond cancer.
National Cancer Institute's Office of Cancer Survivorshiphttp://dccps.nci.nih.gov/ocs/
The mission of the Office of Cancer Survivorship is to enhance the quality and length of survival of all persons diagnosed with cancer and to minimize or stabilize adverse effects experienced during cancer survivorship. Towards these ends, it conducts and supports research that both examines and addresses the long- and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families.
National Coalition for Cancer Survivorship1010 Wayne Avenue, Suite 770
Silver Springs, MD 20910
National Ovarian Cancer Association620 University Avenue
Toronto, Ontario M5G 2L7, Canada
National Ovarian Cancer Coalition (NOCC)PO Box 4472
Boca Raton, FL 33429
This is an organization of ovarian cancer survivors which works to increase awareness and can connect newly diagnosed women with survivors in their area. See contact information for the Greater Hudson Valley, NY, NYC and LI chapters under "Support Groups".
National Society of Genetic Counselors233 Canterbury Drive
Wallingford, PA 19086-6617
Referrals to genetic counselors specializing in cancer genetics.
NYS Ovarian Cancer Information ProgramNYS Department of Health
Bureau of Chronic Disease Services
150 Broadway – 3rd Floor West
Albany, NY 12204
Provides brochures for the general public, posters, NYS Ovarian Cancer Awareness Quilts, and referrals to genetic counselors in NYS with expertise in cancer risk assessment and counseling. Coordinates an email list-serv for providers and consumers with interest in ovarian cancer. Funds education and awareness initiatives around the state.
Office of Women's HealthDepartment of Health and Human Services
Ovarian Cancer National Alliance (OCNA)910 17th Street NW, Suite 413
Washington, DC 20006
A national umbrella organization that works to increase public and professional understanding of ovarian cancer.
Ovarian Cancer Research Fund, Inc. (OCRF)14 Pennsylvania Plaza
New York, New York 10122
Funds research on early detection, diagnosis and treatment of ovarian cancer.
SHARE – Self-Help for Women with Breast or Ovarian Cancer1501 Broadway, Suite 1720
New York, NY 10036
Provides information hotlines in both English and Spanish, peer-led support groups, wellness education and advocacy programs.
Society of Gynecologic Oncologists (SGO)401 N. Michigan Avenue
Chicago, IL, 60611
Provides referrals to gynecologic oncologists.
Society of Gynecologic Nurse Oncologists6024 Welch Avenue
Fort Worth, TX 76133
The Wellness Community919 18th Street NW
Washington, DC 20006
Provides free support groups, educational programs, stress management and social networking for people with cancer and their loved ones.
Women's Cancer Networkwww.wcn.org
Website includes information on clinical trials and treatment options, and an online, interactive Cancer Risk Assessment Survey. Includes listing of gyn-oncologists by name or state.
Disclaimer: Inclusion of materials in this listing does not imply endorsement by the NYS Department of Health.