Ovarian Cancer Resource Materials - Organizations

American Cancer Society

1599 Clifton Road NE
Atlanta, GA 30329-4251
www.cancer.org

Provides free literature and helps patients obtain financial and medical assistance; 24/7 information and resource telephone number (1-800-ACS-2345) available in English and Spanish. Patient and Family Services also available, including "Road to Recovery", "Look Good … Feel Better", etc. All services are free of charge.

American College of Medical Genetics

www.acmg.net

Their website includes "Genetic Susceptibility to Breast and Ovarian Cancer: Assessment, Counseling and Testing Guidelines" (produced in collaboration with the NYS Department of Health).

American College of Obstetricians and Gynecologists Resource Center

409 12th Street SW
Washington, DC 20024-2188
202-863-2518
www.acog.org

A professional organization of physicians who specialize in women's health care.

American Society of Clinical Oncology

225 Reinekers Lane, Suite 650
Alexandria, VA 22314
703-299-0150
www.asco.org

Referrals to gynecologic oncologists in your area.

Cancer Care

275 Seventh Avenue
New York, NY 10001
800-813-4673
www.cancercare.org

Offers educational and support services at no charge to people living with cancer.

Cancer Information Service

National information and education network sponsored by the National Cancer Institute, 800-4-CANCER.

Corinne Feller Memorial Fund

34 Daisey Lane
Montgomery, NY 12549
phone: (845) 778-6607
www.fellermemorial.org

This organization, formed in memory of a young woman who died of ovarian cancer at age 18, focuses on fundraising, education and awareness.

Centers for Disease Control and Prevention, Division of Cancer Prevention & Control

4770 Buford Highway NE, MS K64
Atlanta, GA 30341
888-842-6355
cancerinfo@cdc.gov

Department of Defense Ovarian Cancer Research Program – Congressionally Directed Medical Research Programs

Further information available at http://cdmrp.army.mil/funding/04ocrp.htm or by calling (301) 619-7071.

FORCE – Facing Our Risk of Cancer Empowered, Inc.

934 North University Drive, PMB#213
Coral Springs, FL 33071
954-255-8732
www.facingourrisk.org

For those at increased risk of breast/ovarian cancer due to positive family history and/or BRCA mutations. Gather information and support, communicate with others, learn through librarian-selected links, and locate specialists.

Gilda Radner Familial Ovarian Cancer Registry

Roswell Park Cancer Institute
Elm and Carlton Streets
Buffalo, NY 14263-0001
www.ovariancancer.com
HOTLINE: 1-800-OVARIAN

This line is answered by the Cancer Information Specialists of Roswell Park Cancer Institute who respond to questions regarding diagnosis, treatment and continued care for ovarian cancer patients, friends and families. In addition, the Registry has a HELP-LINE, a telephone support service for women at high risk of ovarian cancer. By calling 1-800-OVARIAN and asking for a HELP-LINE volunteer to make a return call, women will be in contact with concerned volunteers who have made the decisions they are now facing. This enables women to have a one-to-one telephone conversation with other high-risk women or ovarian cancer survivors.

Gilda's Club Worldwide

322 Eighth Avenue, Suite 1402
New York, NY 10001
917-305-1200
www.gildasclub.org

Provides a place where people living with cancer, their families and friends can join others to build social and emotional support as a supplement to medical care.

Gynecologic Cancer Foundation (GCF)

401 N. Michigan Avenue, Suite 2200
Chicago, IL 60611
gcf@smithbucklin.com
800-444-4441

The mission of the Gynecologic Cancer Foundation is to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment. The Foundation supports research and training related to gynecologic cancers.

HospiceLink

Hospice Educational Institute
3 Unity Square
Machiasport, ME 04655
800-331-1620
www.hospiceworld.org

Nonprofit service that provides information on hospice care and refers cancer patients and their families to local hospice programs and publications.

Kids Konnected

PO Box 603
Trabuco Canyon, CA 92678
714-380-4334
www.kidskonnected.org

Provides friendship, education, understanding and support to kids who have a parent with cancer.

Lance Armstrong Foundation

PO Box 161150
Austin, TX 78716-1150
512-236-8820

Focuses on cancer survivorship issues for people living with, through and beyond cancer.

National Cancer Institute's Office of Cancer Survivorship

http://dccps.nci.nih.gov/ocs/

The mission of the Office of Cancer Survivorship is to enhance the quality and length of survival of all persons diagnosed with cancer and to minimize or stabilize adverse effects experienced during cancer survivorship. Towards these ends, it conducts and supports research that both examines and addresses the long- and short-term physical, psychological, social, and economic effects of cancer and its treatment among pediatric and adult survivors of cancer and their families.

National Coalition for Cancer Survivorship

1010 Wayne Avenue, Suite 770
Silver Springs, MD 20910
301-650-9127.

National Ovarian Cancer Association

620 University Avenue
Toronto, Ontario M5G 2L7, Canada
416- 971-9800
www.ovariancanada.org

National Ovarian Cancer Coalition (NOCC)

PO Box 4472
Boca Raton, FL 33429
888-682-7426
www.ovarian.org

This is an organization of ovarian cancer survivors which works to increase awareness and can connect newly diagnosed women with survivors in their area. See contact information for the Greater Hudson Valley, NY, NYC and LI chapters under "Support Groups".

National Society of Genetic Counselors

233 Canterbury Drive
Wallingford, PA 19086-6617
610-872-7608
www.nsgc.org

Referrals to genetic counselors specializing in cancer genetics.

NYS Ovarian Cancer Information Program

NYS Department of Health
Bureau of Chronic Disease Services
Riverview Center
150 Broadway – 3rd Floor West
Albany, NY 12204
518-474-1222
kxg03@health.state.ny.us

Provides brochures for the general public, posters, NYS Ovarian Cancer Awareness Quilts, and referrals to genetic counselors in NYS with expertise in cancer risk assessment and counseling. Coordinates an email list-serv for providers and consumers with interest in ovarian cancer. Funds education and awareness initiatives around the state.

Office of Women's Health

Department of Health and Human Services
1-900-994-WOMAN
www.4woman.gov

Ovarian Cancer National Alliance (OCNA)

910 17th Street NW, Suite 413
Washington, DC 20006
202-331-1332
www.ovariancancer.org

A national umbrella organization that works to increase public and professional understanding of ovarian cancer.

Ovarian Cancer Research Fund, Inc. (OCRF)

14 Pennsylvania Plaza
Suite 1400
New York, New York 10122
800-873-9569
www.ocrf.org

Funds research on early detection, diagnosis and treatment of ovarian cancer.

SHARE – Self-Help for Women with Breast or Ovarian Cancer

1501 Broadway, Suite 1720
New York, NY 10036
212-719-1204
www.sharecancersupport.org

Provides information hotlines in both English and Spanish, peer-led support groups, wellness education and advocacy programs.

Society of Gynecologic Oncologists (SGO)

401 N. Michigan Avenue
Chicago, IL, 60611
800-444-4441
www.sgo.org

Provides referrals to gynecologic oncologists.

Society of Gynecologic Nurse Oncologists

6024 Welch Avenue
Fort Worth, TX 76133
321-434-8639
www.sgno.org

The Wellness Community

919 18th Street NW
Washington, DC 20006
888-793-WELL
http://www.wellnesscommunity.org

Provides free support groups, educational programs, stress management and social networking for people with cancer and their loved ones.

Women's Cancer Network

www.wcn.org

Website includes information on clinical trials and treatment options, and an online, interactive Cancer Risk Assessment Survey. Includes listing of gyn-oncologists by name or state.

Disclaimer: Inclusion of materials in this listing does not imply endorsement by the NYS Department of Health.