Resources for Practitioners
Please Note
The New York State Department of Health cannot provide individual advice or counseling, whether medical, legal, or otherwise. If you are seeking specific advice or counseling, you should contact a licensed professional, a social services agency representative, or an organization in your local community.
This web page links to web sites maintained by other entities. Reasonable precautions are taken to link only to web sites which are appropriate, accurate and maintained by reputable organizations. However, those web pages are provided for the convenience of readers and are not under the New York State Department of Health's control. The New York State Department of Health is neither responsible for nor endorses the information or opinions expressed in those linked sites.
This website also cites and links articles in medical journals recommended by members of the New York State Palliative Care Education and Training Council. They are also provided for the convenience of readers and do not necessarily represent the position, opinion, or endorsement of the Department of Health.
Palliative Care and Hospice: General Information
- Hospice and Palliative Care Association of NYS
- Get Palliative Care: Hospital-Based Provider Directory
- Palliative Doctors Compassionate Care At Any Stage of an Illness
- American Academy of Hospice and Palliative Medicine: Statement on Clinical Practice Guidelines
- National Consensus Project for Quality Palliative Care "What is Palliative Care?"
- National Quality Forum Palliative and End of Life Care
- American Academy of Hospice and Palliative Medicine
- National Hospice and Palliative Care Organization, Hospice Frequently Asked Questions
- CompassionAndSupport.org
Prognosis and Palliative Care
- GetPalliativeCare.org
- American Academy of Hospice and Palliative Medicine, Statement on Clinical Practice Guidelines
- End of Life / Palliative Education Resource Center, Medical College of Wisconsin, Fast Facts Index:
- National Palliative Care Research Center: Functional Status Tools (e.g., ECOG Performance Status, Karnofsky Performance Scale, Palliative Performance Scale)
- The National Comprehensive Cancer Network (NCCN) Practice Guidelines in Oncology: Palliative Care Overview
Benefits of Palliative Care
- Center to Advance Palliative Care, Improving Clinical Outcomes
- Temel, J.S., et al. (2010). Early Palliative Care for Patients with Metastatic Non-Small Cell Lung Cancer. The New England Journal of Medicine, 363, 733-742.
- For Consumers: Palliative Doctors, "Benefits of Palliative Care"
In-Depth Educational Resources for Clinicians Concerning Palliative Care
- EPERC, "End of Life / Palliative Education Resource Center," Medical College of Wisconsin
- Stanford School of Medicine, Cancer Palliation Education Network
- Center to Advance Palliative Care, "Training and Education"
- American Association of Colleges of Nursing, "End-of-Life Nursing Education Consortium (ELNEC)"
- American College of Physicians, "Papers by the ACP-ASIM End-of-Life Care Consensus Panel"
Communication
- End of Life / Palliative Education Resource Center, Medical College of Wisconsin, "Fast Facts:"
- Back, A.A., Arnold, R.M., Quill, T.E. (2003). Hope for the Best, and Prepare for the Worst. Annals of Internal Medicine, 138, 439-443.
- Oncotalk: Improving Oncologists' Communication Skills
- University of Rochester Medical Center, ACGME Competency Project Training Modules in Communication
- Campbell, T.C., Carey, E.C., Jackson, V.A., Saraiya, B., Yang, H.B., Back, A.L., & Arnold, R.M. (2010). Discussing prognosis: balancing hope and realism. The Cancer Journal, 16(5), 461-466.
- Back, A.L., Anderson, W.G., Bunch, L., Marr, L.A., Wallace, J.A., Yang, H.B., & Arnold, R.M. (2008). Communication about cancer near the end of life. The Cancer Journal, 113(7 Suppl), 1897-1910.
Cultural considerations for communication about palliative care and end-of-life options
- End of Life / Palliative Education Resource Center, Medical College of Wisconsin, "Fast Facts:"
- Joint Commission, Advancing Effective Communication, Cultural Competence, and Patient- and Family-Centered Care: A Roadmap for Hospitals
- Stanford School of Medicine: Geriatric Education Center, Improving Communication with Elders of Different Cultures
- LaVera, M., Marchall, P.A., Lo, B., & Koenig, B.A. (2002). Strategies for Culturally Effective End-of-Life Care. Annals of Internal Medicine, 136, 673-670.
Religious, spiritual and existential considerations
- Compassion and Support: Spiritual and Cultural Perspectives
- George Washington Institute for Spirituality and Health
Pain Management
- End of Life / Palliative Education Resource Center, Medical College of Wisconsin, "Fast Facts:"
- CompassionAndSupport.org, Community Principles of Pain Management
Access to Palliative Care
- GetPalliativeCare.org: What should you know about palliative care?
- Palliative Care Provider Directories:
- How do I find a hospice?
Role of Primary Care Provider
- Weckmann, M. (2002). The Role of the Family Physician in the Referral and Management of Hospice Patients. American Family Physician, 77(6), 807-812.
Veterans
- End of Life / Palliative Education Resource Center, Medical College of Wisconsin, "Fast Facts:"
Pediatric Palliative Care
- Initiative for Pediatric Palliative Care: Curriculum:
- Center to Advance Palliative Care: Pediatric Palliative Care
- American Academy of Pediatrics: Policy Statement on Palliative Care for Children
- George Washington Institute for Spirituality and Health
- CompassionAndSupport.org, Pediatrics
Advance Care Planning and Capacity Determination
- Medical Orders for Life-Sustaining Treatment (MOLST)
- Deciding About Health Care: A Guide for Patients and Families
- CompassionAndSupport.org, MOLST Training Center
- CompassionAndSupport.org, Provider Training Curriculum, Beyond the Health Care Proxy: Advance Care Planning for Patients with Serious Illness
- CompassionAndSupport.org, MOLST Trainers Curriculum, The MOLST Program: A Community Approach to Improving Care at the End-of-Life
- CompassionAndSupport.org, MOLST and FHCDA Webinar Series
Patient and Caregiver Education Materials
- American Academy of Hospice and Palliative Medicine, Palliative Doctors, Frequently Asked Questions
- CompassionAndSupport.org
- Hospice and Palliative Care Association of NYS
- National Hospice and Palliative Care Organization: Learn About End-of-Life Care
- The Sense of an Ending: An Arizona nursing home offers new ways to care for people with dementia by Rebecca Mead, May 20, 2013
- United Hospital Fund: Family Care giver's Guide to Hospice and Palliative Care, 2010