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NYS Caregiver Guide 2021

New York State Caregiver Guide I
Welcome 2
Content 7
01. Introduction 9
Who is a Caregiver? 11
Impact of Caregiving 12
02. Caregiver Education 15
Aa a Caregiver, Information will Help You 16
Educational Videos 16
The United Hospital Fund 16
Caregiver Action Network 16
Home Alone AllianceSM 16
Training Resources 16
Caregivers Have Rights 18
Know Your Rights 18
NYS Caregiver Advise, Record and Enable (CARE) Act 18
Under the CARE Act Hospitals Must: 19
Family and Medical Leave Act (FMLA) 20
Did You Know? 20
New York State Paid Family Leave Act 21
New York State Paid Sick Leave 21
03. Creating Your Care Team 23
Creating Your Team 24
Which Caregiving Tasks do You Provide? 27
Get the Family Involved 28
Tips for Difficult Conversations 29
Know Your Purpose 29
Listen 29
Take Your Time 29
Spend Time Together 29
Plan 29
State the Issue 29
Wrap up 29
Services & Programs 30
Home Care 30
Consumer Directed Personal Assistance Program (CDPAP) 32
Adult Day Care 33
Respite Care 34
Transportation 35
Telehealth 36
Adult Care Facilities 38
Skilled Nursing Facilities 38
Expanded In-Home Services for the Elderly Program (EISEP) 39
Did You Know? 39
Working with Home Care Staff 41
Helpful Tips 41
Palliative Care and Hospice Care: What’s the Difference? 42
Planning for Care 44
Which of these Options are Right for You? 45
04. Communicating with Healthcare Professionals 47
Be Prepared to Share Information 48
Tips to Effectively Communicate with Your Care Team 49
HIPAA 50
05. Safety Concerns 53
Medication Management 54
Medication List 54
Creating a Safe Environment 56
Home Safety Checklist 56
Preventing Falls Checklist 56
Home Modifications and Assistive Technology 57
06. Legal and Financial Planning 59
Advance Directives 60
Forms 60
Medical Orders for Life Sustaining Treatment (MOLST) 63
Durable Power of Attorney 63
Financial Planning Resources 64
Tax Incentives 66
07. Medicare and Medicaid 69
Medicare 70
Medigap 70
Medicaid Managed Long Term Care 71
Independent Consumer Advocacy Network (ICAN) 72
New York State Health Insurance Information, Counseling, and Assistance Program (HIICAP) 73
08. Planning for the Unexpected 75
Keep a written Journal of Current Care Needs 77
Back up Support 77
Know Your Options 77
Prepare for Common Emergencies 77
Keep an Information Folder in a Safe and Known Place 77
Get and Stay Organized 78
Tips for Staying Organized 80
09. Seeking Support 83
Attend to Your Own Health Needs 84
Which of the Following would Help You? 84
Asking for Help 87
Be willing to accept Offers of Help 87
Speak up and Spread the Responsibility 87
Differing Opinions about Care 87
10. Resources 89
New York State Resources 90
National Resources 92
Terms You May Encounter 94

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