Advance Care Planning

When caring for someone with Alzheimer's disease it is important to plan ahead. One of the benefits of planning in advance is that the person can participate in the decision making process and have their wishes known. It often becomes difficult and divisive to make key decisions well after a person has been diagnosed with Alzheimer's. Planning in Advance will help ease the transition in early retirement, financial planning, healthcare, and safety and security issues.

To find out more information on Advance Directives please visit: Advance Health Care Directives and Living Wills

For more information on how to discuss end of life planning to family members please visit: Advance Care Planning

In New York State, there are four types of Advance Directives:

  • A Health Care Proxy lets you appoint a healthcare agent - that is, someone you trust to make health care decisions for you if you are unable to make decisions for yourself.
  • A Living Will allows you to leave written instructions that explain your health care wishes, especially about end-of-life care. You cannot use a Living Will to name a health care agent; you must use a Health Care Proxy.
  • A Living Will together with a Health Care Proxy lets you state your health care wishes and name a health care agent.
  • A Do Not Resuscitate Order (DNR) only lets you express your wish to do without cardiopulmonary resuscitation (CPR) - that is, emergency treatment to restart your heart and lungs if your heartbeat or breathing stops.

A Health Care Agent's Rights and Obligations under New York's Health Care Proxy Law:

Your Health Care Agent will only have the authority to make decisions related to artificial nutrition and hydration (for example, use of a tube to give you food and water) if you have communicated your wishes to him or her. You may either tell your agent or write about your wishes in your Health Care Proxy form.

Your agent will have the authority to decide whether or not your heart beat should be restarted through cardiopulmonary resuscitation (CPR) unless you specify in your Health Care Proxy form that your agent cannot make this decision for you.

Once your agent's authority begins, he or she has the right to get your medical information and records to make informed health care decisions for you.

Your agent's decision is final unless an objecting family member or facility obtains a court order overriding the decision or disqualifying the agent.

Your agent is not financially responsible for the cost of your care.

Overall, your agent is required to make health care decisions for you according to your wishes, religious and moral beliefs, and in your best interest.

For more information about Health Care Proxies and to download an application packet please use this document: Health Care Proxy (PDF, 111KB, 8pg.)

Please visit Task Force on Life and the Law web site for more information.