New York State Department of Health Recognizes Endometriosis Awareness Month

Painful Condition Affects 11 Percent of Women in U.S.

Disparities Among Groups Who Suffer From Condition Persist

ALBANY, N.Y. (March 21, 2024) – The New York State Department of Health recognizes Endometriosis Awareness Month, observed each year to raise awareness about a condition that can cause severe pain and infertility that too often goes undiagnosed. Endometriosis is a chronic disease that can affect anyone who has a menstrual cycle, and is associated with severe, life-impacting pain that affects roughly 11 percent of those with a uterus between 15 and 44 years of age.

"Endometriosis is a serious condition that can cause excruciating pain and infertility," State Health Commissioner Dr. James McDonald said. "Sadly, when people mention concerns about menstrual-type discomfort they are often dismissed. The exam room needs to be a safe space where any topic can be discussed with their health care providers and their needs addressed in a personalized deliberate and thoughtful manner."

Endometriosis occurs when tissue similar to the lining of the inside of the uterus, known as the endometrium, grows outside of the uterus where it does not belong. These growths are not cancerous but can cause lifelong debilitating problems, leading to a decrease in quality of life.

Pain is the most common symptom for individuals living with endometriosis. Other symptoms include extremely painful and heavy menstrual cycles, back pain, pain during or after sexual intercourse, during bowel movements, and when urinating. Many people with endometriosis experience anxiety and/or depression due to their symptoms.

In some cases, growth developing outside of the uterus can form scar tissue and adhesions. In extreme cases, these growths can bind organs together, sometimes resulting in the need for surgery.

The disease is often misdiagnosed or missed altogether. Black and Hispanic individuals also continue to be diagnosed at far lower rates than their White counterparts because of systemic inequities in care.

Diagnosis often involves a pelvic exam, ultrasound, or magnetic resonance imaging (MRI). However, the only way to know for sure if an individual has endometriosis is through laparoscopic surgery. There is currently no way to prevent endometriosis, and there is no known cure for the condition. Treatment for the condition can be invasive and focuses on controlling or managing the symptoms.

Increased knowledge, early diagnosis, and care of the condition can slow or halt the natural progression of the disease.

If an individual believes they have endometriosis, they must get checked by their primary care physician or OB-GYN provider. Keeping a log of symptoms and when they occur can also be helpful when discussing endometriosis with a provider.