Children and Youth with Special Health Care Needs (CYSHCN) Program

The Children with Special Health Care Needs Program seeks to improve the system of care for children with special health care needs from birth to 21 years of age and their families. The Program helps to shape public policy so families can get the best health care for their children.

Children served by the CSHCN Program have an illness or condition for which they need extra health care and support services. These children might have a serious or long-lasting:

  • Physical condition,
  • Intellectual or developmental disability, and/or
  • Behavioral or emotional condition.

A few examples of such conditions include cerebral palsy or muscular dystrophy, asthma, sickle cell anemia, diabetes, heart conditions, depression, conduct disorder, and attention deficit hyperactivity disorder.

New York State also supports programs in most counties in the state that help families of CSHCN by giving them information on health insurance and connecting them with health care providers. These programs will also work with families to help them meet the medical and non-medical needs of their children.

Community Resources

Information about Resources, Agencies, Acronyms, Transitions, and Much More

Growing Up Healthy Hotline

You can call the Growing Up Healthy Hotline to learn about resources for health care, immunizations, nutrition and other health and human services. The hotline provides information and referrals 24 hours/day, seven days a week in English, Spanish and other languages. Call 1-800-522-5006, or through TTY 1-800-655-1789.

New York State Multiple Systems Navigator (MSN)

Multiple Systems Navigator is a user-friendly website with health, education, human service and disability information. The information is provided for youths, parents, family members and caregivers that rely on services and supports from child and family service systems. This website was developed by the Council on Children and Families and funded by the Developmental Disabilities Planning Council (DDPC).

Publications